Welcome !
The Fabrazyme Stakeholder's Working Group management guidelines and recommendations for management of the Fabrazyme shortage will be posted in the Featured Article section below soon (6 July or earlier).
Register on the NFDF website to ensure you receive our upcoming newsletter, the "Fabry Focus", and to be eligible to participate in NFDF support
programs.
Participate in the Genetics Day on the Hill in Washington DC on July 16th. Select the Special Events tab in the lower right area of the Home page.
The NFDF now accepts unwanted vehicle donations. Go to the "How to Help" tab (left hand tabs on the home page), and then go to the "Donate a Vehicle" tab on the right.
The NFDF is
building an Ark
...and you can help!
Select this link for more info.
Register on the NFDF website to be on our mailing list to receive our first newsletter, the "Fabry Focus" coming soon.
visitors as of .
President's Message
Greetings! Welcome to the NFDF website, the doorway to our organization. . . . more
"Estimated" Fabry Population (2005 data)
150,000
Suspected number in U.S.
2,000?
People who know
Unknown
Individuals on treatment
Terminology used
News
Read all about it!
Fabry disease news,
NFDF news, etc.
Updated June 19th
Featured Article
Recommendations for management of the Fabrazyme shortage coming soon.
. . . more
Please Take our Survey!
The NFDF will periodically provide new surveys.
New Survey - Feb 6th
Special Events
Partcipate in
Gentetics Day
on the Hill in
Washington, DC