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The Fabrazyme Stakeholder's Working Group management guidelines and recommendations for management of the Fabrazyme shortage will be posted in the Featured Article section below soon (6 July or earlier).         Register on the NFDF website to ensure you receive our upcoming newsletter, the "Fabry Focus", and to be eligible to participate in NFDF support programs.        Participate in the Genetics Day on the Hill in Washington DC on July 16th. Select the Special Events tab in the lower right area of the Home page.       The NFDF now accepts unwanted vehicle donations. Go to the "How to Help" tab (left hand tabs on the home page), and then go to the "Donate a Vehicle" tab on the right.       


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Greetings! Welcome to the NFDF website, the doorway to our organization. . . . more

"Estimated" Fabry Population (2005 data)

150,000 Suspected number in U.S.
2,000? People who know
Unknown Individuals on treatment

 

Terminology used

News

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Fabry disease news,
NFDF news, etc.
Updated June 19th

Featured Article

Recommendations for management of the Fabrazyme shortage coming soon. 
. . . more

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The NFDF will periodically provide new surveys.
New Survey - Feb 6th

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The Faces of Fabry


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