As part of our information gathering efforts, we will frequently post surveys for all or various groups of our membership to complete. You must be registered with the NFDF to take part in surveys and to gain access to the results. Please take all the surveys, current and past, that apply to you as promptly as possible to facilitate the best use of the information we receive. Once you have taken a survey, you may review the anonymous results from all participants who took each survey. See the appropraite survey results link under survey link.
Please select the link(s) below to participate in the survey(s) and to view the corresponding survey results.
Survey 1.
Survey of medical conditions that may be related to Fabry disease.
This survey is intended to gather input from individuals with Fabry disease or their parents or guardians on theeir behalf about other medical conditions that could be related to Fabry disease.
Responses to the medical conditions survey.
Survey 2. Survey of significant medical events and tragedy due to Fabry disease.
This survey is intended to gather information from individuals with Fabry disease or their parents or guardians raise awareness of the tragic impacts of our disease.
Responses to significant medical events survey.
Survey 3. Survey about common symptoms of Fabry disease.
This survey is intended to gather information from individuals with Fabry disease or their parents or guardians to better understand the prevalence of common symptoms in the Fabry disease community.
Responses to common symptoms survey.
Thank you for your participation! The more we learn, the better our ability to make improvements and to meet the needs of the Fabry disease community.
