PLEASE REGISTER!Your personal information will not be shared with others according to the NFDF privacy policy.
The NFDF does not have formal membership in the organization. However, registering with the NFDF is important for several reasons.
We will add you to our mailing list with your consent.
We will send you emails and other notifications with your consent.
Registering enables you to log on and participate in answering questionnaires that aid efforts toward understanding the needs of the Fabry community and improving disease education.
Registering enables you to tell the NFDF what forms of support you personally, your family, and the Fabry community at large needs.
Registering allows access to areas of the website designed for special groups and for special projects in which you may participate, and to obtain tools and other materials from the NFDF.
Registering enables us to quanitify our community/ customer base which is critical to achieving our goals. We have more strength to accomplish our mission and will receive more neeeded attention as we represent a larger population of the Fabry disease community.
Copyright 2007, The National Fabry Disease Foundation