YOUR PARTICIATION IN NFDF INFORMATION GATHERING EFFORTS IS ESSENTIAL TO THE IMPROVED HEALTH AND WELL BEING OF ALL INDIVIDUALS WITH FABRY DISEASE!
NFDF information gathering efforts serve to provide an improved understanding of the disease and how it affects individuals in so many similar yet varied ways and to varied degrees of severity. The information gathered by the NFDF will be used to develop educational materials, to focus additional studies and research, to better focus NFDF efforts on what the Fabry community wants and needs, and to provide the Fabry community with the results of the information gathered. The results of NFDF information gathered will be periodically posted on this website.
All information gathered will be kept confidential in accordance with the NFDF privacy policy.
Published results will be provided on the website without disclosing the identity of the participants.
PLEASE COMPLETE ALL APPLICABLE SURVEYS POSTED TO THE WEBSITE.
WE GREATLY APPRECIATE YOUR CONTINUED PARTICIPATION!
