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National Fabry Disease Foundation Board of Directors

According to our by-laws, the NFDF may have between five and eleven members on the Board of Directors at any time including the President/Chief Executive Officer (CEO). We currently have 6 directors, identified below, with a variety of skills and experience and most importantly generous enough to volunteer their time, energy and expertise to this worthy cause. The Officers of the NFDF are the Chair, Vice Chair, Secretary, Treasurer and President. Being a new organization, the first member serving as the NFDF Chair is the President/CEO. After his initial term, the Chair as well as the other officers will be elected and serve according to the NFDF by-laws.

We are always looking for individuals with needed skill sets and experience to serve on the NFDF Board of Directors. If you have an education and/or experience in healthcare, law, finance, management, public/media relations, marketing, fundraising, education, or other relevant occupations; and you have an interest in Fabry disease support, please send us a statement of your interest and a resume. We are currently evaluating candidates to serve beginning in January 2007. Unfortunately, we cannot accept applications from any individual who serves on the Board of Directors of another nonprofit organization with a similar mission, that serves similar constituencies, or that competes for the same funding sources as the NFDF.

Our Board of Directors

Chair:                     Mr. Jerry Walter
Vice Chair:            Mr. Derek Halberg
Treasurer:             Ms. Sue Brown
Secretary:              Ms. Elizabeth Gaffin
President/CEO:    Mr. Jerry Walter
Member:                Dr. Tracey Krasnow
Member:                Mr. Doug Warnock
Member:                Vacant
Member:                Vacant
Member:                Vacant
Member:                Vacant
Member:                Vacant
Member:                Vacant

 

NFDF Mission, Vision & Values
National Fabry Disease Foundation Vision
National Fabry Disease Foundation Values
Primary Goals to Support the NFDF Mission
National Fabry Disease Foundation Guiding Documents
National Fabry Disease Foundation Board of Directors
National Fabry Disease Foundation-Medical Advisory Board
National Fabry Disease Foundation Staff
Contact the National Fabry Disease Foundation
National Fabry Disease Foundation's President's Message

Mr. Jerry Walter
Mr. Derek Halberg
Ms. Sue Brown
Ms. Elizabeth Gaffin
Dr. Tracey Kasnow
Mr. Douglas Warnock

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