Ms. Brown is a retired association executive with a long history of volunteer work in community organizations. She also brings first hand knowledge of being a female dealing with Fabry disease. She has been on Enzyme Replacement Therapy for several years and particpates regularly in helping others to cope with their disease. Ms. Brown lives in Columbia, MD with her husband Bob.
NFDF Mission, Vision & Values
National Fabry Disease Foundation Vision
National Fabry Disease Foundation Values
Primary Goals to Support the NFDF Mission
National Fabry Disease Foundation Guiding Documents
National Fabry Disease Foundation Board of Directors
National Fabry Disease Foundation-Medical Advisory Board
National Fabry Disease Foundation Staff
Contact the National Fabry Disease Foundation
National Fabry Disease Foundation's President's Message
Mr. Jerry Walter
Mr. Derek Halberg
Ms. Elizabeth Gaffin
Dr. Tracey Kasnow
Mr. Douglas Warnock
Copyright 2009, The National Fabry Disease Foundation
Ms. Brown is a retired association executive with a long history of volunteer work in community organizations. She also brings first hand knowledge of being a female dealing with Fabry disease. She has been on Enzyme Replacement Therapy for several years and particpates regularly in helping others to cope with their disease. Ms. Brown lives in Columbia, MD with her husband Bob.