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National Fabry Disease Foundation
 
Website Terms of Use
 
The NFDF website is provided for educational and informational purposes only.   Using the website implies acknowledgment and agreement by the user to be bound by the terms and conditions in this Terms of Use agreement, as they may be modified from time to time.

Disclaimer

You acknowledge that the information on this website is provided "as is" for general information only. This website does not offer medical advice or recommendations and individuals should not rely on the information posted on this website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The National Fabry Disease Foundation (NFDF) strongly recommends that care and treatment decisions related to Fabry disease and any other medical condition be made in consultation with a patient's physician or other qualified health care professionals who are familiar with the individual's specific health situation.

The NFDF makes no warranties of any kind regarding the operation of this website, including but not limited to any warranty of accuracy, completeness, currency, reliability, merchantability or fitness for a particular purpose, or any warranty that these pages, or the server that makes them available, are free of viruses, worms, Trojan horses, other harmful elements or other code that manifest contaminating or destructive properties and such warranties are expressly disclaimed.


Links from this website

The NFDF makes no representation, warranty or endorsement, express or implied, as to any of the information, services, products or messages on any other websites which may be accessed through a hyperlink on this website. In particular, these links are provided for convenience of reference only and are not intended as an endorsement by the NFDF of the organization or individual operating the website or a warranty or endorsement of any type regarding the website or the information, services, products or messages posted on or available from such website.


Liability

You agree that you will hold harmless the NFDF and its officers, directors, agents, employees, and volunteers from all claims arising out of or related to your access or use of, or your inability to access or use, this website or the information, services, products or messages contained in this website or other websites to which it is linked, including but not limited to claims that you have found something you have heard, viewed or downloaded from this website or another website to which it is linked to be obscene, offensive, defamatory, or infringing upon your intellectual property rights. In no event will the NFDF or the contributors of information to this website be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special or similar damages, even if advised of the possibility of such damages. YOU HEREBY RELEASE AND FOREVER WAIVE ANY AND ALL CLAIMS YOU MAY HAVE AGAINST the NFDF, ITS OFFICERS, DIRECTORS, AGENTS, EMPLOYEES, AND VOLUNTEERS FOR LOSSES OR DAMAGES YOU SUSTAIN IN CONNECTION WITH YOUR USE OF THIS WEBSITE.
 

 

Governing Law

This website (excluding linked sites) is controlled by the NFDF, which is headquartered in the State of Virginia, United States of America. It can be accessed from all 50 states, U.S. territories, the District of Columbia as well as from other countries around the world. As each of these places has laws that may differ from those of Virginia, by accessing this website both you and the NFDF agree that the statutes and laws of the State of Virginia, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to use of this website. You and the NFDF also agree and hereby submit to the exclusive personal jurisdiction and venue of Arlington County, Virginia and the appropriate United States District Court for Arlington, Virginia with respect to such matters. The NFDF makes no representation that materials on the website are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this website from other locations do so on their own initiative and are responsible for compliance with local laws.


Linking From Other Websites

The NFDF may grant the owner of a website permission to use a hyperlink to this website from its website, provided: (a) any such link must clearly be marked "National Fabry Disease Foundation;" (b) the appearance, position and other aspects of either the link or the host website may not be such as to damage or dilute the goodwill associated with the NFDF's name; (c) the appearance, position and other aspects of either the link or the host website may not create the false appearance that any other entity is associated with or sponsored by the NFDF; and (d) the link, when activated by a user, must display this website full-screen and not with a "frame" on the linked website. The owner of any website with a hyperlink to this website agrees to the foregoing terms and agrees to delete any such link upon notice from the NFDF that such permission has been revoked, which notice may be given at any time and for any reason.

The NFDF is not responsible for the information or materials contained on websites linking to this website. Links to this website are provided for convenience of reference only and are not intended as an endorsement by the NFDF of the organization or individual operating the host website or a warranty of any type regarding the host website or the information on the host website.
 

 

 

 

 

 

 

 

 

 

 

 

 

NFDF Mission, Vision & Values
National Fabry Disease Foundation Vision
National Fabry Disease Foundation Values
Primary Goals to Support the NFDF Mission
National Fabry Disease Foundation Guiding Documents
National Fabry Disease Foundation Board of Directors
National Fabry Disease Foundation-Medical Advisory Board
National Fabry Disease Foundation Staff
Contact the National Fabry Disease Foundation
National Fabry Disease Foundation's President's Message

Conflict of Interest Policy
Privacy Policy
Ethics and values
NFDF bylaws

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