The Web Site has moved to a new address - www.fabrydisease.org

 


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Please sponsor Jerry's "ride for life".  See the Special Events section below. We are making great progress!       Unleash your creative spirit and write an original poem.  See the special events section below.         Individuals with Fabry disease please take the three surveys posted on the home page in the "Please take our survey!" section. They are critical to the continued need for increased education, awareness and support to the Fabry disease community.


 What's Hot
 The Fabry Registry
 Do you recognize me?
 Please take our survey(s)!
 Why Register?
 Jerry's "ride for life"
 Express yourself - write a poem

 
The video above, "Treating Fabry Disease", was produced by Invanhoe Broadcast News in December of 2002. 

  visitors as of .

Terms of Use

Quick Links

Notable journal articles

Information gathering

Remembrances and recognition

Basic genetics

Glossary of terms

Website updates

Contact the NFDF

President's Message


Greetings! Welcome to the NFDF website, the doorway to our organization. . . . more

"Estimated" Fabry Population (2005 data)

11,000 Suspected number in U.S.
2,000 People who know
Unknown Individuals on treatment

 

Terminology used

News

Read all about it!
Fabry disease news,
NFDF news, etc.
Updated Aug 4th

Featured Article

Charles Kleinschmidt
... please join us in
saying farewell to
our friend Chuck
. . . more

Please Take our Survey!

The NFDF will periodically provide new surveys.
3 Surveys - June 25th

Special Events

Sponsor Jerry's ride
5 days -
338 miles
See other events
Updated Aug 4th

The Faces of Fabry


Copyright 2007, The National Fabry Disease Foundation

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