The National Fabry Disease Foundation has been accepted again in 2011 to hold the Charles Kleinschmidt Fabry Family Weekend Camp at the Victory Junction Gang Camp in Randleman, NC. Camp dates are 16-18 September, 2011. Get ready to have a blast! ... learn more about Charles Kleinschmidt below
This wonderful opportunity is made possible by our generous major sponsors: The Kleinschmidt Family Foundation, Genzyme, Shire HGT and Goody's as well as many other individual sponsors. Thank you all from the bottom of our hearts!
Kids with Fabry disease (ages 6 to 16 with possible age exceptions) and their families are invited to attend this wonderful fun-filled nearly-expense-free camp experience on September 16-18, 2011.
Family Applications Volunteer Applications
There are no costs to the participants to attend camp except home airport parking and possible checked baggage fees if you wish to check a bag. Lodging, meals, great activities, and travel to and from the camp are all provided by the NFDF and our sponsors. No-charge hand-carry bags are encouraged.
We are so excited about this opportunity for our children with Fabry disease and their families!
We can take about 32 to 35 families to camp.
Please sign up for our e-newsletter from the What's Hot section of our website at www.fabrydisease.org to keep up with application information and dates.
IN HONOR OF
The Fabry disease community's camp is named after the late Charles Kleinschmidt of Crown Point, Indiana. Charles "Chuck" Kleinschmidt was a role model and inspiration to so many. The burden Fabry disease placed on Chuck did not prevent him from living a very full and active life. Chuck served in the U.S. Navy, earned a Bachelor's and Master's degree in Business Administration, had a very successful career as a healthcare administrator, was an avid golfer, and was very active in his community. The story of Chuck's life serves as an incredible example for others with Fabry disease of how to live life despite having a chronic illness. Thanks to the generosity of the Kleinschmidt family, Genzyme, Shire HGT, Good'y and our other supporters, hundreds of individuals will benefit from the Victory Junction camp experience and from our reflection on Chuck's life.
Victory Junction Gang Camp was started by Kyle Petty and his wife Pattie in honor of their son Adam Petty. The camp is one of the Association of Hole-in-the-Wall camps originally started by the actor Paul Newman.
Check out the Victory Junction website at www.VictoryJunction.org for more details.
We can enjoy the following facilities and programs and more!
· Michael Waltrip Operation Marathon Sports Center
· Silver Theater
· Arts & Crafts
· Adam's Race Shop
· Bass Pro Shops Catch, Kiss & Release Marina Kyle Petty
· Charity Ride Across America Water Park Adventure
· Jessie's Horse Power Garage Home Depot Tree House
· Tony Stewart Maze - Ashburn/Davis Love Miniature Golf
· Jimmie Johnson'sVictory Lanes Kurt Busch Superdome
· Evening Programs
