Everyone can help in some way by making a donation, fundraising for the Fabry community yourself, or by volunteering. See the different options below. How can you help individuals with Fabry disease live better and longer lives? Thank you!
Make a donation to support the Fabry community
(select the link below
):
Learn how to raise funds to support the Fabry community. If you want to raise money by partcipating in a
walk, run, or bike event or by having a unique event of your choice, you can! Or participate in the NFDF's national campaign to
"
Work Up A Sweat For Someone Who Can't
". The posibilities of ways to support the Fabry community are endless!
Select this link to:
GET STARTED FUNDRAISING
Ideas and tips for fundraising (coming soon)
If you are unable to provide a donation at this time or wish to help in some other way there are many ways for you to support the Fabry community.
Other ways to help.
NFDF Founder's message:
As an individual with Fabry disease, the quote above from Hubert Humphrey is especially meaningful to me. Each of us can help to improve the lives of others by telling our stories, by participating in information gathering efforts, by completing thorough family trees, by participating in the Fabry Registry via participating healthcare professionals, by participating in clinical trials or by contributing to the greater good of the Fabry community in other ways. Improved understanding and management of the disease cannot reverse much of the damage already imposed on many of us, but we all can help to prevent it from happening to those that come after us. Sharing information and participating helps to improve disease understanding and education efforts for the benefit of many others if not always for the greatest benefit to ourselves.
Jerry Walter
