The National Fabry Disease Foundation submitted a proposal to hold a Fabry disease family weekend camp at the Victory Junction Gang Camp in Randleman, NC and we are pleased to announce we were accepted!

We are so excited about this opportunity for our children and teens with Faby disease and their families. The Fabry disease community's camp is named after the late Charles Kleinschmidt of Crown Point, Indiana. Charles "Chuck" Kleinschmidt was a role model and inspiration to so many. The burden Fabry disease placed on Chuck did not prevent him from living a very full and active life. Chuck served in the U.S. Navy, earned a Bachelor's and Master's degree in Business Administration, had a very successful career as a healthcare administrator, was an avid golfer, and was very active in his community. The story of Chuck's life serves as an incredible example for others with Fabry disease of how to live life despite having a chronic illness. Thanks to the generosity of the Kleinschmidt family, Genzyme, and our other supporters, hundreds of individuals will benefit from the Victory Junction camp experience and from our reflection on Chuck's life.

Victory Junction Gang Camp was started by Kyle Petty and his wife Pattie in honor of their son Adam Petty. The camp is one of the Association of Hole-in-the-Wall camps originally started by the actor Paul Newman.

Kids with Fabry disease (roughly ages 6 to 16) and their families are invited to attend this wonderful fun-filled expense-free camp experience on September 17-19, 2010.  There are no costs to the participants. Lodging, meals, great activities, and travel to and from the camp are all provided by the NFDF and our sponsors. 

Check out the Victory Junction area of our Home Page and check out the Victory Junction website at the link below. Our Fabry family camp will be tailored to activities appropriate for our kids. Even though the kids will miss a day of school, this is a small price to pay for the adventure of a lifetime.

Check out Victory Junction

We can enjoy the following facilities and programs and more!

· Michael Waltrip Operation Marathon Sports Center

· Silver Theater

· Arts & Crafts

· Adam's Race Shop

· Bass Pro Shops Catch, Kiss & Release Marina Kyle Petty

· Charity Ride Across America Water Park Adventure

· Jessie's Horse Power Garage Home Depot Tree House

· Tony Stewart Maze - Ashburn/Davis Love Miniature Golf

· Jimmie Johnson’s Victory Lanes Kurt Busch Superdome

· Evening Programs

We can take about 32 families to the camp.

Please let us know as soon as possible that you are interested,  the size of your family by name and age, and the best airport for us to fly you from as soon as possible at info.TheNFDF.org so we can plan. Then, we'll keep you posted about when applications are due.